There are quite a few events coming up that you may want to put on your calendar and if you have a child with a food allergy who would be interested in meeting other food allergic kids, check out our Stages Meeting this Saturday.

  • STAGES MEETING - This Saturday!

This Saturday, MAY 12, 2012 – Washington FEAST Stages Meeting for KIDS – 1-3 PM, Location: Mercer View Community and Event Center http://www.mercergov.org/Page.asp?NavID=2014.  This will give food allergic kids an opportunity to meet older kids who have food allergies and ask them questions about how they handle their food allergies at school and in other environments.   We plan to have a trained psychotherapist on hand to help facilitate the discussion.   We could really use some older kids, high school and college, to fill out this event.  Pre-K and Elementary aged kids should arrive at 1PM, Middle Schoolers at 1:30 PM, High Schoolers at 2 PM and College/Adults at 2:30.

We suggest that younger kids should leave right after their session is over as WA FEAST cannot guarantee that discussions that happen in the older kids sections will be age appropriate.  Older kids can be present during the younger kids discussions.   Women/girls with milk allergies should use the bathrooms in the basement of the building as there is a coffee/espresso machine near the entrance to the women’s bathroom located on the main level.  All attendees will be asked to sign a waiver.
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  • MARINERS GAMES!  May 25, July 26, August 15 – look for a WA FEAST table at upcoming games!
Peanut-controlled sections at Mariner’s Games - http://seattle.mariners.mlb.com/sea/ticketing/special_group.jsp?group=nopeanuts  – Thanks again, to Michael San Soucie for setting these games up!  Go MARINERS!
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  • **NEW!!***SOUNDERS FOOD ALLERGY AWARE SECTION! JULY 7 – 8 PM!
The Sounders are getting into the action!  First game that the Sounders will offer a restricted section is JULY 7th!  The ticket sales for these games will be different.  You will buy the ticket directly from WA FEAST.  Stay tuned for more info and special thanks to Polyclinic allergist Dr. Jonathan Becker for advocating on our behalf with the Sounders !  Go SOUNDERS!  Check out the Yahoo listserve or the WA FEAST Facebook page for more info or email me, kelly@wafeast.org.
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Ever dreamed of an overnight camp that didn’t serve any of your child’s allergens??  For some, this dream is now a reality!  Camp Blue Spruce, a worry free camp for kids with food allergies, will launch this summer!   An amazing team of parents, camp experts, and allergists lead by food allergy parent Louise Tippens will take place from August 19-24 near Banks, Oregon (just west of Portland).  Washington FEAST is not officially organizing this camp but WA FEAST board member Kelly Morgan has been actively involved in organizing and planning the food offerings.  The camp is registering campers NOW and may also be looking for college age food allergic counselors.
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Kyle will be doing a community performance on either the evening of September 21 or September 22. as well as a Tween/Teen event.  Stay tuned for more info!  If you know of a school that would like to have Kyle come and do a presentation, please let us know!  We’d love to work with you.   Contact kelly@wafeast.org for booking or Kyle at kyledine@gmail.com.
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Never too early to help out with the Walk or sign up your team and start getting pledges!  If you are interested in volunteering or helping procure sponsorship for the Walk, email leader@wafeast.org and we’ll get you connected with organizers.
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  • GRACES 5 “MAJOR 8 FREE” DINING EVENT – TBA/Restaurant Training
Stay tuned for a special dining event and fundraiser at Grace’s 5!  WA FEAST is working with Grace’s 5 on a “Major 8 Free” dining event.  http://graces5.com/  Washington FEAST is also working with FAI Northwest, Spot Check and the Washington Restaurant Association to improve food allergy awareness via restaurant training.  http://www.spotck.com
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  • FOOD ALLERGY AWARENESS WEEK
And finally, think about doing something to raise awareness about food allergies next week.  Drop off a FAAN poster in your nurses office, your favorite restaurant or a community center or offer to do a Be a Pal presentation at your neighborhood school. You can find helpful downloads on FAAN’s website:  http://www.foodallergy.org/section/helpful-information
Kelly Morgan, President, WA FEAST

Local emergency response to 911 calls for anaphylaxis

by Kelly Morgan on April 16, 2012

On April 2, Washington FEAST had a meeting to discuss our concerns regarding emergency response to 911 calls for possible anaphylaxis in City of Seattle and King County.

We identified several differences between what we as food allergy parents might expect when we call 911 and what actually happens when we make the call. This list of observations is not exhaustive but includes:

- Caregivers are trained to request a medic truck if anaphylaxis is suspected and in contrast dispatcher decision to send a medic truck is influenced by a patient’s prior history of anaphylaxis or lack thereof.

- Caregivers are trained to implement an individuals physician-signed emergency care protocol when a broad range of symptoms of anaphylaxis are present and this is to halt the reaction and prevent the reaction from becoming life-threatening, whereas emergency responders are trained to administer epinephrine when patient is having difficulty breathing or hypotension (low blood pressure and/or loss of consciousness); see protocols below.

- Caregivers are educated on the importance of immediate transport to the closest ER once a reaction is recognized and epinephrine is given.  We are told that two doses of epinephrine should  always be available in case the first dose wears off before the patient arrives at the emergency room.   In contrast, the emergency response system may or may not send a medic car capable of transport.

- Caregivers are educated to understand that anaphylaxis can exhibit a biphasic pattern, meaning that it can disappear with initial treatment only to return later.   It is important that emergency responders understand that clinical findings present when they arrive could change drastically and quickly and that transport to the ER as quickly as possible is desirable.

We all agreed that we are grateful for all that emergency responders to keep all of food allergic individuals safe and hope we can work together for the best outcomes for these individuals.

We discussed two primary ways to address the problem including approaching the heads of the emergency medical systems in Seattle and King County, and eventually the state, as well as possibly working on a grass roots education effort on general awareness and understanding of anaphylaxis.  We have been successful in setting up a meeting with representatives from King County Emergency Medical Systems and are working on setting up a similar meeting with the City of Seattle.

Regarding a more grassroots effort, one possibility is getting the Anaphylaxis Community Experts program going in our area,

http://www.aanma.org/2010/12/find-an-anaphylaxis-community-expert-ace/.

To prepare for these meetings with King County and City of Seattle, we will expanding the list above.  It is very helpful to have real life stories to illustrate what can go wrong when we are working under different understanding of how to respond to anaphylaxis. It would also be great to have examples of times when 911 calls for anaphylaxis went very well.  As a reference for a standard of treatment for anaphylaxis, we are using the NIAID Guidelines for the Diagnosis and Management of Food Allergy in the United States. The link provided is to the clinician summary:

http://www.niaid.nih.gov/topics/foodAllergy/clinical/Documents/FAGuidelinesExecSummary.pdf

Differences in the definition of anaphylaxis and symptoms needed to be present to trigger the decision to use of epinephrine seem to be the major source of concern.  Below I have included the section on anaphylaxis from the King County and Seattle emergency medical training manual. You can see that the list of symptoms that need to be present for an epinephrine to be given is a lot shorter than one you might find on the emergency care plan signed by your allergist!

Thanks to all who attended the meeting on Monday for contributing to the discussion, and to all who have shared their stories of 911 calls over the last few years. WA FEAST successfully advocated for epnephrine autoinjectors to be carried on all emergency response vehicles after the death of Kristine Kastner.  At this juncture, it seems that bringing training protocols more in line with NIAID guidelines is an appropriate goal as well as advocating that this any subsequent changes are included in upcoming trainings as soon as possible.

As a food allergy community, we need to understand the constraints of the emergency response system, primarily being that dispatchers are in a constant process of prioritizing multiple 911 calls at any given moment. Equally important , however, is learning to most effectively interface with the system to ensure the best outcome for individuals experiencing an anaphylactic emergency.

If you have a story to share please write it up with dates if possible, but please omit personal info.

Kelly Morgan, President
Washington FEAST, www.wafeast.org
1-425-24FEAST (messages)
kelly@wafeast.org
Mail: 2400 NW 80th St., #315
Seattle WA 98117

ANAPHYLAXIS

ALS Indicators
Respiratory distress
Signs and symptoms of shock which include:
 Poor skin signs (pale, sweaty)
 Sustained tachycardia (see page 7)
 Hypotension (systolic BP less than 90 mmHg) with an appropriate clinical setting
Unstable vital signs
Use of EpiPen by EMT or healthcare professional.
BLS Indicators
Bite or sting with local reaction or usual reaction to medication or food
Stable vital signs
No anaphylaxis
BLS Care
EpiPen for anaphylaxis (see page 13).
Oxygen as needed.
Reassure patient.
Remove stinger by scraping away from puncture site.
Any patient who receives an EpiPen (pre or post EMS arrival) should be transported (mode of transport depends on clinical findings and symptoms) and evaluated in a hospital.

EPINEPHRINE (EPIPEN)

Indications For Use
EMTs may deliver epinephrine via an EpiPen injector for ANY case of suspected anaphylaxis (respiratory distress and/or hypotension must be present).
Seattle EMTs
 Patient (any age) has a history of same and a prescription for epinephrine
 Patient is less than 18 years of age with no prescription, but permission is obtained from parent or legal guardian. This may be written, oral or implied.
King County EMTs
There are no requirements for:
 Age
 Having a prescription
 Written/oral permission (beyond standard consent)
If there is doubt about the need for EpiPen, consult with local paramedic or local control doctor.
Dosages
 Adult and children equal to or over 30 kg or 66 lbs: use EpiPen (0.3 mg)
 Child under 30 kg or 66 lbs: use EpiPen Jr. (0.15 mg)

Injection Procedure
Confirm that patient is experiencing anaphylaxis and meets above criteria.
1. Check medication date and that the EpiPen dose matches to patient’s size.
2. Remove clothing and prep area of thigh with alcohol pad.
3. Remove safety cap and locate injection site on lateral thigh.
4. Place black tip of injector against thigh and push hard until injector activates.
5. Hold in place for 10 seconds. Note and document time of injection.
6. Remove injector, place in sharps container and massage site for 10 seconds.
7. Reassure patient and monitor for response/side effects to injection.
8. Continue to provide oxygen. Ventilate if necessary.
9. Monitor and document vitals every 5 minutes.
10. Update incoming medics on patient status and response to injection.
Use of EpiPen by EMT or healthcare professional is an ALS indicator. Any patient who receives an EpiPen (pre or post EMS arrival) should be transported (mode of transport depends on clinical findings and symptoms) and evaluated in a hospital.

More Info on Peanut Controlled Mariner Games

by Jana Robertson on February 18, 2012

Peanut Controlled Zone at Safeco Field

Thanks again to guest blogger Michael San Soucie!

Hey everyone,

The 2012 game dates are now available for ticket orders at www.mariners.com/nopeanuts.  I also noticed a couple other cool things about the games being offered to our group this year.  Two of the games are also free giveaway days and one is a business man’s special during the summer which we have not had previously.  Pretty cool!

So here are some more specifics on the game dates and the special events taking place those nights:

Sunday, April 22nd vs. Chicago White Sox – this is a day game as we have always requested for those with smaller children.  It is also Little League Day!  This means a chance to go on the field prior to the game.  For those wanting to go on the field for the pre-game parade, have your child wear his/her uniform and get their early.  The parade begins at 11:30am and you just need to line up at the Right Field ramp near section 114.  This is basically below our seating section on the lower level.  All kids 14 and under also  receive a drawstring backpack upon entering the stadium.

Friday, May 25th vs. Los Angeles Angels of Anaheim – this game is a chance to see Albert Pujols, one of the best players in the game today.  It is also Dustin Ackley Bobblehead night.  The first 20,000 fans get a free bobblehead.  You will need to get there very early to get one of these.  It will be a very popular giveaway.

Thursday, July 26th vs. Kansas City Royals – this night is also the 8th annual Stitch ‘n’ Pitch night.  Bring your knitting, stitching, quilting, or other fiber arts projects to the game, get help from experts, view the latest samples from area shops, and meet other enthusiasts while enjoying a night at the ballpark.

Wednesday, August 15th vs. Tampa Bay Rays – this game is our very first business man’s special; a midweek day game!  Take the day off of work and enjoy a sunny, summer day at the ballpark with your kids.  Also a second opportunity for those with younger children to come to the ballpark and not have the kids out too late.

What a great selection of games this year.  I can’t wait!  Hope to see and meet lots of you at the ballpark this season. 

Michael San Soucie

2012 Peanut-Controlled Zone Mariner Games

by Jana Robertson on February 2, 2012

 

Thank you to guest blogger, Michael San Soucie

Peanut Controlled Zone at Safeco Field

I know!  I know!  The Super Bowl is this weekend so what am I doing talking about baseball.  Well, for those of you who have met me, you know that my favorite thing about the Super Bowl is that it is the last game of the football season.  That means it is soon time for pitchers and catchers to report to spring training!

With that in mind I wanted to let you all know we have game dates confirmed for the Seattle Mariners peanut controlled games this upcoming season.  I like to get this information out early to everyone in case they need to plan any summer trips around these dates.  Tickets are not available quite yet but should be in the next several weeks.  So here are the dates:

  • Sunday, April 22nd vs. the Chicago White Sox
  • Friday, May 25th vs. the Los Angeles Angels of Anaheim
  • Thursday, July 26th vs. the Kansas City Royals
  • Wednesday, August 15th vs. the Tampa Bay Rays

Once again, the Mariners have been extremely generous to us and offered us a good variety of dates.  Sunday so we get a day game.  Friday while school is still in session.  And two summer dates vs. two exciting teams with lots of young talent on their rosters.  I can’t wait!

I hope we have really good turn outs to all four games so we can show our support for the Mariners efforts.  Once tickets are available, you can purchase them at www.mariners.com/nopeanuts.

That is all for now.  Take care, and as for the game on Sunday……….Go Giants!

Michael San Soucie

Nurse Educator at Seattle Children’s Hospital

by Kelly Morgan on November 5, 2011

Food Allergy Initiative Northwest and Seattle Children’s Hospital have been in partnership over the last several years in our Food Allergy Community Health Education Program. Part of this program funds a nurse educator, who does FREE presentations at schools, camps, day cares (anywhere, really) on food allergies. Ann Wahl, our new nurse educator, has made dozens of presentations to almost 2,000 attendees this year alone, all across Washington state. In addition to her presentation tailored to lay people she also has a presentation targeting health professionals.

We are lucky to have such a wonderful, free resource available in our state, and I want to make sure everyone is making use of it!

To schedule a no cost visit call or email Ann at (206) 884-1012 or foodallergy@seattlechildrens.org
And as always feel free to ask me (or any of the other FAI-NW board members) any questions about our nurse educator or the other initiatives we’re working on. We’re happy to help and grateful that our state is at the forefront of this program!

More information at http://seattlechildrens.org/foodallergy/

Thank you to our guest blogger, Wendy Heipt. You can contact her at wandeheipt@gmail.com

Thank you for a Spooktacularly Fun Afternoon

by Jana Robertson on October 30, 2011

It was great to see so many families out today. I have not had a chance to look at our check in sheet but we definitely had 20+ adorable costumed food allergic kids and their families enjoying the festivities at Montlake Community Center today.

I must plug Montlake Community Center. When I told them we had food allergic kids coming to the event, they asked the custodian to clean the floors last night with a machine and he wiped surfaces and mirrors down really well. The only group using it before us was a karate class so we didn’t have nearly as much pre-event clean up as we expected. Whew! On top of that, I am very grateful that the City of Seattle granted us a nonprofit rental fee discount (not as easy to get as one might think).

Now I must thank 3 members of the WA FEAST Board for their commitment to making this happen. Desi Tucker is responsible for the cheeky signage and flyer as well as the cool carnival games and the portable PA system and she was assisted by husband Trent and kids on loading, decorating and clean-up;, Teisha Stiles brought 6 members of her family including her artistic and helpful children (and their friend Patrick) who turned the hall into a festive space in no time and helped with the carnival games, and Tiesha whipped up the cutest homemade Wishing (fishing?) Cauldron I have ever seen; Jenny Nolan kept us all organized and oversaw a very successful craft and coloring area. My family made good on their promises to me (OK, so maybe I did a little begging and bribing!) and did a great job with their DJ Checkit Skit and my kids and I played dance music for Dina Blade’s family dance which was a lot of fun.

Everyone pitched in on clean-up – THANK YOU! We were out by 4:30ish!

I am privileged to also say thank you to the WA FEAST Board for a very kind and unexpected gesture. They decided that they would like to help my 13 yo PA daughter and I attend FAAN’s Teen Summit in Washington DC. We may not be able to go this year, due to jazz band commitments, but I am touched and honored and feel that I barely deserve such generosity. If we do go, I hope to bring back some first hand knowledge of how to run such an event and perhaps try to do the same thing here on the West Coast. I am humbled. Thank you.

Finally, I wanted to acknowledge the businesses who made donations to the door prize raffle. I think this is the complete list but please let me know if you took something home that isn’t listed here.

Allerbling,http://www.allerbling.com – two bracelets

Allermates, http://www.allermates.com – 8 bracelets, two lunch boxes

Allergic Living, http://www.allergicliving.com – subscription

The Bugabees Friends with Food Allergy, children’s book by Amy Recob, http://thebugabees.com/

Princess and the Peanut Allergy, children’s book by Wendy McClure, http://www.amazon.com/Princess-Peanut-Allergy-Wendy-McClure/dp/0807566233

Sophie Safe Cooking, Cookbook by Emily Hendrix, http://www.sophiesafecooking.com

Food Allergies and Children (3) /Food Allergies and Schools (3) – Pocket Guides from the Allergy Free Table series. http://www.allergyfreetable.com/

Flourishing with food allergies, book by A. Anderson,http://www.flourishingwithfoodallergies.com/

And last but not least, the “oh so adorable that I wish I had an epipen to put in it for myself” the Epi-Puppy, http://epipuppy.com/

Now the good news for those of you who did not make it today is that we did not send all of this stuff home which means that you may have a chance to win some of it at a future FEAST event!

Be sure to check out “How to have a not-so-spooky Halloween.” It was created by Thanita Clancy of Loudoun Allergy Network and is being share with WA FEAST members with her permission, thanks to the magic of the FAAN Food Allergy Support Group Advisory Commitee Facebook page.

Kelly Morgan

WAFEAST presents Halloween Carnival

Lots of food-free fun planned for Saturday October 29, 2011!
Games, prizes, contests and more!
Join us 1:00-4:00 PM at the Montlake Community Center
1618 E Calhoun Street, Seattle, WA 98112

Please RSVP for this event by responding to this Washington FEAST Halloween Spooktacular Survey

If you have further questions, contact leader@wafeast.org

Download RELEASE OF LIABILITY AND ASSUMPTION OF RISK
for this event.

Milk Allergy Study in Babies in Seattle

by WAFeast on October 7, 2011

Milk Allergy study in babies birth to eight months. Please visit http://www.asthmainc.org/ or contact studies@asthmainc.org

From Blogger Pictures

Back to school tips – Plan! Plan! Plan!

by WAFeast on August 12, 2011

As children, we all remember having butterflies at the end of the summer as our parents prodded us to pick out lunch boxes and try on new clothes. As parents of food allergic children, we may feel those butterflies return, as we think about turning over responsibility of our children’s well being to school staff. If we aren’t careful, our anxiety can spill over and increase the butterflies that our kids are feeling as a natural part of returning to or starting school. While seeking out a therapist in anxiety management may be something to consider, much can be achieved via good planning. There are several vehicles for planning for accommodating food allergic students in the school setting, including the Individualized Health Plan (IHP) and 504 Plan, in some cases they are one in the same.

· Emergency action plan. This plan is developed in conjunction with the school nurse and is based on written prescription orders from your child’s physician. This plan describes the symptoms of anaphylaxis that your child may exhibit and instructs staff about what actions to take in the event of a food allergy emergency. If you are in a state where nurses are not allowed to delegate judgment authority to staff, you may find that the staff will be advocating that all reactions are treated with epinephrine.

· Risk reduction plan. This plan informs school staff about how to AVOID having to implement the Emergency Action Plan. The goal is to address as many plausible risky situations as possible and contingencies for unanticipated situations. The topics you might address here include what allergens are allowed in the room for parties and snacks, review any food used in class projects or science kits, assess potential risks associated with field trips,

· Inclusiveness plan. This plan addresses steps to be taken by the school and staff to avoid exclusion of your food allergic child and can layer on top of a risk reduction plan, but in some ways I think it is beneficial to think of it as a separate exercise. Many parents supply safe snacks/treats for their food allergic children. However, due to the fact that this is a “separate but equal approach,” more and more parents are requesting that all celebrations and snacks be inclusive. This can be achieved by implementing non-food rewards and celebrations and, if food is allowed, only food listed on an approved snack/party list is used.

Where to start? See if your state has food allergy guidelines in place. If not, guidelines from other states can be very useful. Finally, there are many 504 planning resources on the web. For more info, check out http://www.foodallergy.org/.

Kelly Morgan

Workplace Food Allergies Taskforce

by WAFeast on August 8, 2011

On Saturday, August 27th at 10:30 am Christina and I will be meeting at the Bellevue Library to hash out the beginnings of a pamphlet advising workplaces on how best to handle employees with food allergies, as well as some best practices for employees with food allergies.

If you have food allergies and are in the workforce, please join us, or e-mail us what has worked (and not worked) for you. What are some challenges you’ve faced?

If you know of someone struggling with food allergies in the workplace, we’d love to hear from them.

Kids just entering the workplace who have questions – we’d like to know what those questions are.

Also – if you or someone you know work in Human Resources or are lawyers with experience in ADA cases, we need some expert backup as we move down the line here.

We would like to create a pamphlet (or pamphlets) that is useful to WA-FEAST, FAI, FAAN, HR departments, supervisors, and employees alike. If you know of work already done in this area, we’d love to use that too.

Thanks, Alice

www.SafeAndYummy.com

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